My dear mother Eleanor passed away with this illness in January 2016 ; it is her passing that inspired my husband John, and my brother Ger. to climb Croagh Patrick, in Wesport every year since with their friends to raise funds for the Association ; to help those with the condition and their families. The work of sunriseupcroagh and your donations provide a much needed “boost” to a small but much needed organisation. They are trying to fund building a clinical trial database, which is critical for further progress within the country; they also need to hire their first specialist nurse. Thank you in advance. Susan.