Caroline and friends have joined forces . This Red Tide team will take on the 34K Sligo Camino on 2nd July 2016 to raise awareness and funds for PSPA Ireland.
When a family member is first diagnosed with Progressive Supranuclear Palsy it is bewildering but it is not until you have travelled that...
Caroline and friends have joined forces . This Red Tide team will take on the 34K Sligo Camino on 2nd July 2016 to raise awareness and funds for PSPA Ireland.
When a family member is first diagnosed with Progressive Supranuclear Palsy it is bewildering but it is not until you have travelled that road do you comprehend how devastating this condition can be for those diagnosed and their families and friends. This cruel disease robs people of their ability to walk, talk, see and swallow. Frequenty unexpected falls can lead to serious injury - so you are constantly on alert. The care required to manage this disease is relentless. There is no treatment and no cure. There is a lack of awareness of the existence of these conditions and this makes it difficult to get the help when you need it. We want to change this and feel we can do this by supporting PSPA Ireland and its members.
Support, information and research needs funding so we are raising money for PSPA Ireland who give their support and time to work for people with Progressive Supranuclear Palsy(PSP) and Corticobasal Degeneration (CBD).
PSPA Ireland is a voluntary organisation that is dedicated to providing advice, information and support for people living with or affected by the rare neurological conditions; Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).
Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) are neuro-degenerative brain disorders.
The death of nerve cells in the brain leads to difficulty with balance, movement, vision, speech and swallow. The conditions