Online Fundraising for Clubs, Schools and Causes

Help Avril beat Lyme disease


Hi everyone. My name is Avril and I’m 33 years old and live in Dublin. I never thought I would have to reach out and ask you all for help as I’ve always been an independent soul but the truth is I’m really struggling. Both physically, mentally and financially. It’s one of the hardest things I have had to do but I have to set my pride aside and be open to receiving help and support from others.

Hello everyone! I know I have been somewhat distant over the past number of months on the blog but I was busy behind the scenes organising this monumental fundraiser. I have also been busy attending hospital appointments and am finding it difficult to delegate my extremely limited energy levels. I am blessed in the sense to have some extremely loving and supportive people in my life that have been a godsend with regards offering their time and advice. As most of you are aware by now, I have been battling crippling late stage Lyme disease over the past number of years. The treatment has been rough to say the least but I have fully embraced everything that has been offered to me even when one particular medication gave me drug induced hepatitis! I am a fighter but sometimes being a fighter is not enough. Cutting a long story short I have researched a hell of a lot of treatment options available to Lyme patients, unfortunately, the majority of these are based outside of Ireland. As it stands, I have exhausted all available options over here. I am currently taking specialised supplements, LDN, turmeric, cats claw, vitamin D and attending acupuncture to help reduce inflammation in my body and regulate my immune system. I am also attending UV light therapy to address psoriasis which was instigated by this infection along with psoriatic arthritis. I plan on introducing lymphatic massage after I have completed my round of vitamin B12 injections. So as you can see things are a little manic at the moment.

Lyme Av

Throughout my exploration of treatment options with regards Lyme disease, I started to notice immunotherapy in the form of stem cell treatment being mentioned quite a bit online. I also became aware of fellow Lyme patients some that I know quite well undertaking this treatment. The results have been outstanding for them. Their lives completely changed and dare I say improved. I deliberately waited to see how they would get on days, weeks and months after treatment as my faith has been somewhat shattered in the hope of a silver bullet but they continue to do fantastic. The immuno therapy they received is regarded as 85% successful but requires a lot of dedication afterwards (up to a year and beyond). This is in order to get the full benefits of the treatment. Unfortunately, this treatment comes with one hefty price tag, €30,000 to be precise. In terms of a treatment for Lyme disease it is still pretty ground breaking and hence only available in a clinic called Infusio based in Germany and Los Angeles. The treatment comprises of two weeks of intensive treatment to prepare your body for stem cell therapy. Cultivation of your own stem cells from fat cells in your abdomen and of course administration of these cells back into the body. There are also an abundance of complementary therapies, nutritional support and aftercare support included in your specific package. Each package is tailored to the individual needs of the patient. I must point out that I have absolutely zero affiliation to Infusio or anyone who works there. It is my personal decision to attend this clinic and receive treatment. I have not made this decision lightly and have weighed up all the possible pros and cons meticulously. For me personally this is the treatment I need to explore. I am receiving no discounts or extra benefits for mentioning Infusio on my blog. This post and all subsequent posts regarding them and my treatment plan is purely educational. I am in no way pushing any treatment on anyone. All I suggest is if you are exploring treatment options not just at Infusio, research everything you can about them. Contact the medical team, contact past patients and do not be afraid to ask for medical and scientific evidence. At the end of the day it is your body, your health, your money and your future.

As the treatment I want to undergo costs way beyond my means, I have had to make the extremely hard decision of reaching out and asking others for help. I am extremely blessed that so many fantastic companies, people and brands who I have gotten to know through blogging have been beyond kind and generous. I have received the most beautiful hampers, jewellery, skincare sets and vouchers in the post to pop into our online raffle. As it stands I have 80 hampers/sets/vouchers with a combined value of approx €7000. I know amazing right! To say I am completely blown away by all of this is an understatement. There are also a couple more hampers en route. So after a whole weekend of snapping pictures and organising individual hampers we have decided to go live with the raffle. Ok so now you are (hopefully) thinking great how does it work? Well we have decided to link it in some way to our fundraising page. For every €10 a person donates this gets them 1 ‘raffle ticket’  into our draw. So for example Mary Jones donates €50 so she will get 5 raffle tickets. To make things easier we are sticking to €10, €20, €30 and so on denominations. We are assigning (on a spread sheet) raffle ticket numbers to donations in order of the date a donation was made. So using the same example Mary Jones was the first person to donate to our fundraising page. As she donated €50 she is entitled to 5 tickets so will be allocated raffle ticket numbers 1-5. I hope that makes sense. We will be putting up all the info online as we receive it so there will be full transparency and everyone will be aware of their ticket numbers.  Those who have donated in person have been added to our fundraising page as offline donations and will be assigned tickets in the same manner. Any anonymous donations can be seen by me when I log into my account. The number of prizes will increase as donation targets are met. Kev is the mathematical one so has it all planned out. Each prize is either valued at approximately €50. €100, €150, €200 and €250 (rounded off to the nearest value). The prizes will be allocated a number prior to the draw taking place so there is a proper paper trail and everyone can clearly see what is happening etc. I have taken some wonderful pictures detailing each hamper/set/voucher, the approximate value of each prize and the person or company who kindly donated the prize. These will be added to a post on the blog and on social media detailing all the prizes as targets are met. If you have any queries/want to donate a prize please do not hesitate to contact me at [email protected] We are still trying to organise an exact date and location for the draw to take place but rest assured it will be in accordance with regulations and will be fully transparent. So please make sure you keep an eye on this post and social media. Terms & conditions apply. Don’t forget to share with all of your friends and family.

 Each prize is truly beautiful and comes from a place of love. All products are legit, new, unopened and in date. I am so excited to share these with you and hopefully see our little treatment pot growing. €30,000 is a hell of a lot of money and I know how hard money is to come by so it is nice to be able to offer a chance of winning something nice in return for your kindness and generosity. I do not want to put pressure on anyone but any donations big or small would be very much appreciated. I know it is a huge ask but I would love your support in making my dream of getting better and being able to live my life again come true. I plan on returning the love, support and kind gestures I have received to others going through illness when I do get better. Keep your eyes peeled on the blog as it will be continuously updated with regards raffle date, location, new prizes added to the draw etc.
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LIST OF PRIZES 

Jo Browne – Natural facial cleansing balm gift set, estimated prize value €42. Kindly donated by Jo Browne.

Jo Browne Luxury Gift Set

Elf Cosmetics – A selection of makeup and skincare products in a hamper, estimated prize value €50. Kindly donated by The Works PR.

ELF Cosmetics Hamper

Lily O’Brien’s Chocolates – A selection of chocolates in a hamper, estimated prize value €50. Kindly donated by Lily O’Briens.

Lily O’Briens Chocolate Hamper

Emma’s So Naturals Eco-Soy Candles – A selection of candle’s in a hamper, estimated prize value €60. Kindly donated by Emma.

Emma’s So Naturals Eco-Soy Candle Hamper

Daisy By Marc Jacobs Eau So Fresh Twinkle – EDT spray (75ml), estimated prize value €80. Kindly donated by The Works PR.

Daisy By Marc Jacobs Eau So Fresh Twinkle – EDT 75ml

Spectrum Collections  – The glam clam 10 piece makeup brush set, estimated prize value €68. Kindly donated by Spectrum Collections.

Spectrum Collections – The Glam Clam Makeup Brush Set

Clarins – A selection of skincare and makeup products in a hamper, estimated prize value €250. Kindly donated by Clarins Ireland.

Clarins Hamper

Merritts For Hair – A selection of haircare products in a hamper (hamper 1), estimated value €50. Kindly donated by Merritts For Hair.

Merritts For Hair Hamper 1

Merritts For Hair – A selection of haircare products in a hamper (hamper 2), estimated value €50. Kindly donated by Merritts For Hair.

Merritts For Hair Hamper 2

Ladurée Dublin – Gift voucher for afternoon tea for two, estimated value €50. Kindly donated by John Collins.

Ladurée Dublin Gift Voucher

Alex and Ani – Two gold adjustable bangles, estimated value €72. Kindly donated by Yvonne at Alex and Ani Ireland.

Alex And Ani Gold Bangles

Roger & Gallet – Euphoric fleur d’osmanthus set and mini fleur de fig set, estimated value €65. Kindly donated by Market Match Pr.

Roger & Gallet Sets (gift set 1)

Ted Baker London - Jewellery set consisting of a silver necklace, earrings and a bracelet, estimated value €170. Kindly donated by Arlene at Timemark Ltd.

] Ted Baker London Silver Jewellery Set

Nía Natural Beauty - A selection of Nía skin and body care products in a hamper, estimated value €113. Kindly donated by Celia at Nía Natural Beauty.

[caption id="attachment_3104" align="aligncenter" width="373"] Nía Natural Beauty Hamper[/caption]

: http://www.apalershadeofbeauty.com

Supporters

13
10-09-2018

Anonymous

Good luck av

30.00
10-08-2018

Jane ahlstrom

Best of luck with the treatment xxx

10-07-2018

Mari Dunne

Hope you raise enough & you get treatment to help you get better & live a fuller life

22-06-2018

Gerry & Mary Munnelly

All the best with the fundraising and your health is priceless.

100.00
17-06-2018

Maeve Dollery

10.00
17-06-2018

Marion Kane

Goodluck Avril x

10.00

Social Feeds

Facebook Feeds

Status updated: 16th Oct, 2018

Today was a pivotal day, the start of a new chapter in my life. One of healing and recovery. Kevin Mcdonnell had the important job of administrating my stem cells. This mornings operation was a great success. Apologies for the shocking way I look, this past week has taken so much out of me and I’m swollen up like a balloon with my glands and lymph nodes. I’m also suffering an almighty break out which is the badness coming out. Basically I’m looking so hot right now - not! 😂

I’m excited for what lays ahead. I’m flying home on Sunday and it’s complete bed rest for me for the next 100 days so these bad boys can do what they do best. I’m back over here again in February for additional treatments. As I have to raise some extra funds for this I have had to reopen my go fund me page. I’m sorry I have to nag you all once more but if you could lend any sort of hand I would really appreciate it. 💚

My go fund me link: https://www.gofundme.com/help-avril-kick-lymedisease?pc=ot_co_dashboard_a&rcid=2af38e33292649a1bb52c4fcb6d30b6e

Status updated: 15th Oct, 2018

Tomorrow is D-day. I am booked in for surgery at 7am. I don’t know whether I’ll get the stem cells tomorrow or Wednesday as they have to be processed in a specialist lab. I am both nervous and excited. Still smothered with a dose so am just out of a eucalyptus bath to try help clear the badness out. Today was an intense day with treatment. A lot of iv’s to prepare my body, help my lymphatic system and to try fight bacteria and viral infections in my body. It will be a long day tomorrow and I’ll be fairly out of it afterwards so if you don’t hear from me you’ll know why. 💚

Status updated: 14th Oct, 2018

Delighted to see the new NICE guidelines for Lyme disease (treatment). This is a very handy diagram to have if you or anyone you know has been bitten by a tick regardless if you present with the bullseye rash or not. Please save this on your phone and bring it to your gp if you need it. At least it will point gp’s in the right direction re treatment.

Lyme disease is a treatable and curable disease when caught early and treated with the right antibiotics. I’m using my voice and personal story to try and stop other people suffering needlessly 💚

#LymeDiseaseAwareness

Status updated: 14th Oct, 2018

I have been smothered with a dose all weekend. It’s a good sign, it means my immune system is fighting but man do I feel miserable. I couldn’t move on Saturday but managed to get out for some lunch today. Had a delicious salad and then we may have come across dunkin donuts. I’m ready to head back into infusio in the morning. My body is looking forward to being looked after again. 💚

Status updated: 13th Oct, 2018

I’m not really a religious person but I am quite spiritual. I always have this thing with white feathers. Some very freaky things have happened over the years and white feathers have paid a big part in them. Anyway I went outside to get some fresh air and to sit in the sun yesterday (when my treatments were finished). I couldn’t find a seat so just sat on the side of the curb (just outside infusio). I look down and I see a white feather underneath me. It was the only white feather there and it was so comforting to see. Fast forward an hour later and we have just gotten out of the taxi at our apartment. Seeing as it was still sunny I decided I wanted to sit out in it for a while so we sat down on a bench just outside our apartment. We both look down and see a white feather fly from beside Kevs feet right over to settle beneath mine. Very strange. I think someone is definitely watching over me.

Twitter Feeds

@Yourbeauty26 I think I need to nudge the hubby x

Tue Oct 16 21:33:01 - 0 Favorite

@Yourbeauty26 Ah stop dying to get my mitts on one

Tue Oct 16 21:15:50 - 1 Favorite

@AngelaMahon @InfusioFFM @Beautylymin @BeautyBratcom @ALuxeList @HonestlyCeline @SineadyCady @makeupmonster_… https://t.co/7Slfw6jccE

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@SineadyCady @InfusioFFM @Beautylymin @BeautyBratcom @ALuxeList @HonestlyCeline @makeupmonster_ @SooSoBeauty… https://t.co/IKzqHtN18d

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@SooSoBeauty @InfusioFFM @Beautylymin @BeautyBratcom @ALuxeList @HonestlyCeline @SineadyCady @makeupmonster_… https://t.co/LgEr1sR5t4

Tue Oct 16 19:42:41 - 3 Favorite

@ALuxeList @InfusioFFM @Beautylymin @BeautyBratcom @HonestlyCeline @SineadyCady @makeupmonster_ @SooSoBeauty… https://t.co/pPXj5DAFf9

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