Online Fundraising for Clubs, Schools and Causes

22q11 Ireland and PANDAS Ireland

Hi all,

I'm running the Dublin Marathon this year for two causes, 22q11 Ireland and Pandas Ireland, to support my friend and her family. This is their story, 
https://www.irishtimes.com/life-and-style/health-family/by-age-four-he-couldn-t-walk-eat-or-drink-wi...

Any donations will be split between the two causes.

22q11 Ireland is a registered charity, donations will facilitate the hosting of the 22q European Conference in Dublin this year. Donations to PANDAS Ireland will be used to create information packs for doctors to raise awareness of this condition.

I'd appreciate any support you can offer, every little counts. 
Thanks, Brenda
 
22q11.2 DS is a missing piece on the 22nd chromosome and brings with it 180 different symptoms affecting almost every system in the body: heart, palate, kidneys, immune system, brain. https://www.22q11ireland.org/

Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections, known by the acronym PANDAS is an autoimmune disorder that affects the brain. http://pandasireland.ie/

: https://www.irishtimes.com/life-and-style/health-family/by-age-four-he-couldn-t-walk-eat-or-drink-without-jerking-1.3198322

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Status updated: 21st Jul, 2018

https://www.spectrumnews.org/news/toolbox/algorithm-flags-harmful-mutations-single-copies-genes/amp/?__twitter_impression=true

Status updated: 20th Jul, 2018

"Our data show a delay in the diagnosis of 22q11.2 deletion syndrome with noncardiac symptoms".
https://www.researchgate.net/publication/261475685_Clinical_Features_and_Follow-Up_in_Patients_with_22q112_Deletion_Syndrome

Status updated: 20th Jul, 2018

Encourage each other..... it's so easy to pull someone down, pull them up instead.

Twitter Feeds

These amazing parents. Our kids need help. Please help!!! https://t.co/MbzxGR6l8E

Sat Jul 21 00:37:22 - 0 Favorite

Common antibiotic used for treatment of #pandas should be monitored closely https://t.co/Z0Psnnziey

Fri Jul 20 15:12:49 - 0 Favorite

Tune in tonight if you can. US TV channel ABC 20/20 features #Pandas https://t.co/VyM1Q4sXjl

Fri Jul 20 15:06:27 - 0 Favorite

https://t.co/fTgNs73rSp

Fri Jul 20 14:09:33 - 0 Favorite

Sometimes the effort we put in doesn’t create the big splash we were hoping for... but all these ripples add up to… https://t.co/zFqIOXoXNE

Fri Jul 20 09:24:10 - 0 Favorite

It’s real and it’s really hard on the kids and their families #pandas #pans https://t.co/R8MxSvdcJB

Thu Jul 19 23:38:57 - 1 Favorite

Tune in if you can... look forward to when we can see it in Ireland. https://t.co/vr684hA8kB

Thu Jul 19 20:40:40 - 1 Favorite

“There is also the emergence of a broader umbrella term called Pediatric Acute-onset Neuropsychiatric Syndrome (PAN… https://t.co/NsEK0puBWG

Thu Jul 19 10:06:17 - 0 Favorite

For our US friends... ABC’s Nightline and 20/20 will feature PANDAS this Friday, July 20th. 20/20 comes on during… https://t.co/MkkJMm3JtE

Thu Jul 19 09:53:18 - 0 Favorite

Thanks to Children's E-Hospital for carrying out this survey https://t.co/bZKTZ60hOM

Wed Jul 18 19:27:03 - 1 Favorite

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