Online Fundraising for Clubs, Schools and Causes

22q11 Ireland and PANDAS Ireland

Hi all,

I'm running the Dublin Marathon this year for two causes, 22q11 Ireland and Pandas Ireland, to support my friend and her family. This is their story,

Any donations will be split between the two causes.

22q11 Ireland is a registered charity, donations will facilitate the hosting of the 22q European Conference in Dublin this year. Donations to PANDAS Ireland will be used to create information packs for doctors to raise awareness of this condition.

I'd appreciate any support you can offer, every little counts. 
Thanks, Brenda
22q11.2 DS is a missing piece on the 22nd chromosome and brings with it 180 different symptoms affecting almost every system in the body: heart, palate, kidneys, immune system, brain.

Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections, known by the acronym PANDAS is an autoimmune disorder that affects the brain.



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Status updated: 19th Oct, 2018

Status updated: 19th Oct, 2018

"Together, our observations indicate that LoF variants in SETD1A cause a range of neurodevelopmental disorders, including schizophrenia"

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Dr. Ayla Wilson, PANDAS/PANS specialist from High Five Family Health in Canada

Fri Oct 19 12:13:39 - 0 Favorite

Wed Oct 17 23:53:12 - 0 Favorite

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Mon Oct 15 14:10:35 - 0 Favorite

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Sat Oct 13 22:10:32 - 3 Favorite

Nicely done for #Pandas #Pans Awareness

Sat Oct 13 22:08:06 - 2 Favorite

#pandas #pans #anorexia

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Fri Oct 12 22:07:35 - 1 Favorite

A Canadian pediatrician is calling on the medical community to acknowledge the existence of a rare and controversia…

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