Online Fundraising for Clubs, Schools and Causes

22q11 Ireland and PANDAS Ireland

Hi all,

I'm running the Dublin Marathon this year for two causes, 22q11 Ireland and Pandas Ireland, to support my friend and her family. This is their story, 
https://www.irishtimes.com/life-and-style/health-family/by-age-four-he-couldn-t-walk-eat-or-drink-wi...

Any donations will be split between the two causes.

22q11 Ireland is a registered charity, donations will facilitate the hosting of the 22q European Conference in Dublin this year. Donations to PANDAS Ireland will be used to create information packs for doctors to raise awareness of this condition.

I'd appreciate any support you can offer, every little counts. 
Thanks, Brenda
 
22q11.2 DS is a missing piece on the 22nd chromosome and brings with it 180 different symptoms affecting almost every system in the body: heart, palate, kidneys, immune system, brain. https://www.22q11ireland.org/

Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections, known by the acronym PANDAS is an autoimmune disorder that affects the brain. http://pandasireland.ie/

: https://www.irishtimes.com/life-and-style/health-family/by-age-four-he-couldn-t-walk-eat-or-drink-without-jerking-1.3198322

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Status updated: 19th Jan, 2019

Intellectual humility: the importance of knowing you might be wrong.
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Status updated: 19th Jan, 2019

"Every single one of the experiences described above can cause pain – physical, emotional, social, psychological, and spiritual pain. To our remarkable brains, pain is pain is pain. In some special ways, it doesn’t matter to the brain if the pain is caused by a physiological experience or a grieving heart."

https://www.psychologytoday.com/us/blog/the-brain-pain/201901/what-is-pain

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"The presence of endocrine features may assist in the diagnostic process, leading to final diagnosis of a syndromic disorder."
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"There are patients in our clinics all of us – neurologists and psychiatrists – are missing. These patients are believed to have psychiatric presentations, but they do not. They are autoimmune,”
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